Well, we made it to Disney World and had a "magical" time! It is truly like stepping out of one world and into something completely different. Everyone so nice, happy, helpful, smiling, singing, splashing, handing out stickers, snapping pictures, inviting you to eat, giving you tips on how to catch the best shows, meet the characters of Disney, skipping lines, anything and everything Disney at your fingertips. We stayed at the Polynesian which is just a lake across from Cinderella's castle. We watched the fireworks from our balcony or bed every night. We met almost every character and rode nearly every ride in the 4 Disney World parks. Anna had a blast. As did Camille. Magic Kingdom was our favorite park. We walked so much, but we were always ready to go the next day. We were even brave enough to go out a couple of nights. Anna was such a trooper and enjoyed meeting the characters the most. She loved their big faces and laughed so hard each time they would do something funny! Camille enjoyed everything...the rides, shows, parades, fireworks, the non-stop sugar treats, she even said she likes the Tower of Terror. However, she will NEVER ride in the AeroSmith Roller Coaster again!
Anna continues to do well. I think the drop seizures are about 97% gone and she still continues to have the long tonic seizures about once a week. That is what the surgeon expected after the surgery in September. Yes, she had one at Disney, but we at our resort for the night, so she was able to sleep afterwards and it didn't slow us down. We are adjusting some of her medications now and it is expected that we will go back for a week long video EEG sometime after the first of the year. Doctors are hoping that the area that the seizures are starting from has been narrowed down from the surgery and they will be able to pin point the exact starting point of the seizure. This is a little ways down the road, so we are keeping this far out on the horizon for now. I am planning Camille's B-Day party, Christmas, and then Anna's birthday, before we plan any more doctor or hospital visits.
Anna and I are at Dell Children's Rehab Center 3 days week and then she is attending school as much as possible. The therapy is working and her right side continues to get stronger. It is expected that it will make a full recovery with intensive therapy.
Thanks for checking on our sweet baby Anna! Please continue to pray for reduced seizures and full mobility.
Love,
Rebecca
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