Anna survived almost a full week of school, therapy and doctor appointments. She tuckered out on Thursday and we kept her home to rest on Friday. Just too much between school and travelling to Dell almost everyday. This week is more of the same. We have appointments at Dell everyday this week, except for Friday. Anna continues to get stronger each day and is tolerating and enjoying therapy and school. She has had 2 seizures since coming home from the hospital on 10/27. Doctors have suggested that we increase one of her med's and lower another one to see if it keeps the seizures further apart. The drop seizures seemed to have been eliminated with the surgery, although we have seen some seizure like twitching from time to time. Not sure what this means. Doctors have also suggested that we go back into the hospital in about 6 months for an extended EEG to see what the seizures really look like and where they are coming from. Too much to think about now.
For now, we are going to focus on Disney World the week of Thanksgiving and being grateful that we are able to go on vacation and that we have survived a roller coaster of a year! We could have done it without your prayers and our family's support!
Thanks for checking on Anna and continuing to pray for our sweet baby.
Love,
Rebecca
2 comments:
It was SO good to see your BEAUTIFUL face! You always make me smile! I am so happy you guys are getting "away." Have fun with your PRINCESSES!
Hi American clan. Glaad to see that my two nieces are doing so well and that you have a special holiday planned. Rebecca you and Louis are two very special people and I wish we could meet and that I could hold both of my nieces while they are small enhough to cuddle. Louis, Mom talks about you and your family very often and she is very, very proud of you both. I almost feel as though I've met your family boet! Keep well. Love the Reinholds.
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